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WHY B2-InF?
THE MAIN IDEA of B2-InF is to share citizens’ perception of ART with clinics so as to contribute to their alignment with the concerns of society as well as to provide guidance for policy-making processes.
This is an entirely bottom-up approach and can be described as a new opportunity to “give voice to citizens towards improving ART for society”.
B2-InF will compare the citizens’ perceptions with the information provided by ART clinics to society.
Both pillars of research (perceptions and information) will be analysed from gender, sociocultural, and legal perspectives.
OBJECTIVES
There are no existing studies of public needs and concerns with respect to ART.
B2-InF gives voice to citizens and it works to guarantee that ART meets socially desirable outcomes.
The project is comparing views of the public with the information provided by clinics, to assess their alignment from gender, sociocultural, and legal prospective.
There are no existing studies of public needs and concerns with respect to ART.
This is an opportunity to compare views of the general public with the information provided by clinics and to assess their alignment from gender, sociocultural, and legal perspectives.
Test an innovative co-creation methodology that bridges research communities with the wider public in the area of ART, with the capacity to align research developments with the needs, expectations and values of society.
To promote public engagement with ART, B2-InF will conduct 120 interviews and 17 validation workshops/seminars with different stakeholders designed to collect feedback and validate national guidelines.
Although B2-InF will focus on assisted human reproduction, the same methodology could be used to investigate public attitudes towards related issues such as adoption, organ donation and volunteering.
B2-InF will co-design with stakeholders a roadmap that identifies concrete research goals needed to make ART better aligned with the needs, expectations and values of society, in a process where societal actors and researchers actively cooperate to co-define actually felt needs.
This roadmap will inspire scientists in ART-related fields to include the perspectives of citizens in the design of future research.
Provide information to policymakers responsible for the legal conditions of ART, allowing them to create legislation in line with the citizens’ needs and expectations.
B2-InF will produce policy briefs for relevant government ministries in 8 countries, as well as for the Health Policy Platform of the European Commission and the Human Reproduction Team of the Sexual & Reproductive Health section of the World Health Organization (WHO).
Collect, analyse and transfer social scientific knowledge, expectations, and concerns about ART to clinics.
B2-InF will generate new empirical data concerning public representations and knowledge of ART in populations that are currently under-documented in the scientific literature.
It will use this data to produce eight national recommendation guidelines for clinics.
METHODOLOGY
STAGE 1 - DATA COLLECTION
In STAGE 1, the two dimensions of the project will progress in tandem. On one hand we find the Giving Voice to youth Society’s perceptions and, on the other hand, Collecting Clinic Information Available for Society, in order to carry out a thematic analysis of the data collected.
Regarding the study of perceptions, interviews will be done to 120 citizens (not patients) of 18-30-year-old, and it will use the following segmentation variables: age, gender, socio-educational level, religion, sexual orientation and family status.
Interviews guidelines linked to ART, including themes to be explored: perceptions, expectations and concerns; ethical, legal and gender implications; knowledge and service providers.
With respect to Collecting Clinic Information Available for Society, 30-40 ART clinics will be analyse in target countries. The variables for the selection of ART clinics will be: company size, ART offered and geographical diversity.
The material to be collected will be webpages and physical information, i.e., leaflets and informed consent forms.
B2-InF will conduct a thematic analysis and prepare a final report including national and global results that will be validated by workshops with young populations and B2-InF members.
STAGE 2 - BUILDING GUIDELINES
The first stage of the project, focusing on collecting information from society about their perspectives and knowledge on ART as well as from clinics regarding their current services and approach, opens the path for the second stage: BUILDING GUIDELINES.
Three main objectives compose the second stage:
- To compare views of the general public with the information provided by clinics;
- To assess their alignment from gender, socio-cultural, and legal perspectives, and
- To produce eight national guidelines that identify concrete research goals needed to make ART better aligned with society’s needs, expectations, and values.
B2-InF’s gender content analysis will specifically focus on gender differences concerning values and opinions related to different decision capacities and opinions regarding gender differences in the responsibility of ART clinics and ART users.
During the second stage, the project will try to go beyond the fundamental male/female dichotomy and also investigate, where possible, representations of and information about transgender and intersex populations, as they are becoming increasingly involved with ART technologies.
In addition to the above, this stage will also compare the results of stage one concerning socio-cultural analysis, focusing on the following activities:
- To observe how young people approach ART (Is it a scientific advance or a sociological threat? The socio-cultural references and values mobilized to justify their representations?).
- To evaluate the sociodemographic and socio-cultural characteristics that impact ART knowledge, awareness, and representations. (Do family situations, religion, economic status, education level, or origins play a role in how ART is known, perceived and judged?)
- To identify expectations regarding ART among young nationals that conform to or diverge from dominant representations (statistically speaking, or the most accepted/tolerated) in each selected country.
B2-InF legal analysis is interested in analyzing Social Perceptions of ART and its relationship to ART’s legal and case law regulations, including soft law, at national, EU and third-country levels.
B2-InF will also do a legal revision of the Information about ART.
STAGE 3 - DATA AWARENESS
The two objectives of the building awareness stage are to identify relevant stakeholders and inform them about the final recommendation guidelines, and raise awareness about those.
The project will develop a mechanism that enables systematic and responsive management of the everchanging pool of organizations, initiatives and players with a position to influence the value streams of the project.
With this objective in mind, the project will implement a methodology designed for continuous development and strengthening of relationships with significant target audiences, clinics, governances and citizens.
